Joseph, My Mom, and Unanswered Questions

Joseph in May. He has grown up so much since September.

This is another post by Jenn, Susan's daughter. Susan passed away on April 7th after an 8-month battle with melanoma. 


 This Thursday was my son Joseph's last day of school until next year, and we celebrated by bringing in fruit for the class and letting his teachers know how thankful we are. When I picked him up he was sitting happily with his friends, laughing and eating his snack, and though he was happy to see me, he wasn't in any hurry to leave.

What a difference since September, when I first brought Joseph to Kindercare, which is right across the street from where I teach in Philadelphia. He was two then and, because of my mom, had never before had to go to daycare or school. Like my girls, Joseph loved "Nana Days," when my mom brought him to the Discovery Museum or the playground and generally showered him with love. This September, a mere month after my mom's diagnosis with Stage IV melanoma, Joseph started school. He sobbed and clung to my leg when I dropped him off, and when I picked him up afterwards, nearly eight hours later, he was so overcome with emotion that he fell off his chair onto the floor as soon as he saw me and again broke into sobs. "Mommy," he said, and the look on his face was clear: "I didn't know if you were coming back."

Joseph on the first day of school, looking a little nervous.

Of course I was coming back. And as Joseph saw that this was true, day after day, week after week, and as he made friends and played on the playground and grew to love his teachers in the two-year-old classroom (Ms. Wanda, Ms. Stefanie, Ms. Jessica, Ms. Angie), he began to relax and enjoy himself. Eventually he gave me a hug and a kiss goodbye in the morning and ran off to play with his friends.

Joseph at 3 months, when my mom first started caring for him.

None of this is to say that no longer having my mom care for Joseph was not a huge loss, or that her two years of caring for him were not extremely important in his life. I plan to tell Joseph stories about his time with my mom for the rest of his life so that, if he doesn't remember himself, he will at least know. He will know how much he was loved, and what sacrifices were made for him. And another thing: none of this is to say that had I not come back, for whatever reason, that Joseph wouldn't have been truly traumatized, regardless of how wonderful his teachers were. And he would have been especially traumatized had all reasons for me not coming back been blocked from him forever. Had all information about me been blocked from him forever. I've been thinking about this lately as I think about the mysteries surrounding my mom's early life because of her adoption. She was three months old when my grandparents took her home. Three months! Who held her during those days and weeks before her new life? Who first saw her smile? Was she loved, spoken to, rocked back to sleep when she cried?

This winter, my mom received a letter from the Children's Home Society of New Jersey, the adoption agency that placed her, in response to a letter she had sent them asking for more information about her life, since she had been reunited with her sisters and her original mother had recently passed away.  What possible reason was left for any secrecy? The agency did send my mom more information about her father, and an older son that he had, but wrote that they could tell her nothing about who cared for her for the first three months of her life. "We could have you speak with a current foster family if you are curious as to what that experience is like," they wrote. That made us laugh.

My mom and dad also received another letter from
the Children's Home Society of New Jersey this

My mom, me, and Joseph in Parque Retiro, Madrid, in July 2013.

winter, one in response to their letter urging the agency to support S873/A1259, or the Adoptees Birthright Bill (signed into law in NJ in May) which will allow adult adoptees access to their original birth certificates, or OBCs. The American Academy of Pediatrics and the Child Welfare League of America, among many, many other groups and institutions, support legislation such as this. Still: "We will take no position on the bill," the agency wrote to my parents.

I must admit that this is as much a mystery to me as the first three months of my mother's life. Why would an institution whose sole goal is to protect children not speak out on behalf of those thousands of children it placed for adoption who had their rights stripped from them? Donna Pressma, President and CEO of the Children's Home Society of Trenton since 1986 even chairs, according to her biography, a committee for the Child Welfare League of America (this one on children with HIV).

There are some other mysteries for me as well, mysteries I was reminded of as I searched the agency's website for clues to my mom's history, to my history. For instance: Why must an adoptee pay anything in order to receive information about his or her own family history? I knew that my mom paid for the piece of paper with minimal information about her original family (the one we laughed about for its inaccuracies with my mom's sisters this fall) back in 2002, but the prices listed here reminded me how much. $75 for basic information, $200 for a complete background, and $500 for a search, meaning that the agency would attempt to contact an original family member for you. $100 for each additional search (a sibling, a father). $50/hr for a pre-search counseling session. If I remember correctly, for my mom this consisted of someone asking her, "Why do you want to know?" (Eventually, my mother would pay several thousand dollars to an outside source to find her mother on her own so that she could deliver a letter to her "in her own voice," something I believe that is important for all adoptees to be able to do).

Also: why did my mom's original mother ever have to pay anything to the adoption agency? This winter my mom's sister Jo gave us a letter her mother had kept all these years about just this. Apparently she had fallen behind on payments but finally caught up, and a letter was sent to acknowledge this.  My mother's parents also paid a lot of money to finalize her adoption. I know diapers and formula are expensive, but ... well, it just doesn't add up.

Joseph at 2 months. So much had already happened in his life. Where and with whom was my mom at this age?

Children's Home Society of New Jersey, if you are reading, let me say that it seems, from your website, that you do some wonderful work for children. You wrote to my mom that you read her letters with "great compassion," and indeed much of your work does seem to be infused with this compassion. Yet how can compassion for adopted children stop once they become adults and begin advocating for their rights? Where is the compassion in charging them $500 simply to connect them to the parent or parents that you had a part in separating them from? And why can't we know where my mom was for the first three months of her life? Do those records not exist?

Faced with the losses tied up in sealed-records adoption, one can become overwhelmed. Faced with any loss, actually, one can become overwhelmed. I know that's how I was feeling last September when I picked up Joseph, sobbing, from the floor after his first day of school. Back in the car, once he was safely buckled, I let the feelings sink in. What I had already lost with my mom's diagnosis. What I might lose. Mom.

It was then, when I was feeling most lost, that the phone rang. I didn't recognize the number, but something made me pick it up. Joseph, unusually, sat quiet in the back.

"Hello, this is Jenn," I said.

"Jenn? Jenn Gentlesk?" spoke a sweet, yet inquisitive, and perhaps slightly nervous voice.

"Yes."

"I received your letter today, your letter you sent by certified mail, the one about your mom, Susan Perry ... I'm ... her sister." Carol then explained that my mom had another, younger sister (Jo), and that they both had been frantically searching for my mom for two weeks, ever since Jo had accidentally found a birth record in her mother's apartment.

I can't speak for my mom, but I know that at this moment in my life, when I was feeling a bit as though God had dropped me off at daycare and was never coming back, to hear "We were frantically searching for you," and then to be found, was nothing less than miraculous. I am grateful, and humbled, to have been touched by this miracle. It has sustained me through this incredibly difficult year. And I'm hoping that, like Joseph at his school, each day going forward will be a little easier for me. That each day I'll find some joy.

Yet is shouldn't take a miracle (or thousands of dollars) for people who are related to each other by blood to find each other. There are enough mysteries and tragedies in life that we can't do anything about and need true miracles for. As I reflect on this year -- the beautiful reunion with my mom's sisters, the devastating loss of my mom -- I know there are some questions that I'll never be able to answer. But others, well, I'm going to keep searching until I find what I'm looking for ... I'm going to search for answers for my mom.

My mom and Joseph in Spain last summer. She would hate how she looked in this picture (she had just woken up on our first day in the country, and was jet-lagged from our day of travel), but I love how her hand is on Joseph's leg, and how happy they look just sitting together.

NJ Adoptees Can Get Birth Certificates in 2017: The Possible for the Perfect

This is Jenn, Susan's daughter, posting again on her behalf. As regular readers of this blog know, Susan passed away April 7th, 2014 after an 8-month battle with melanoma. She was an ardent supporter of S873/A1259, aka the Adoptees Birthright Bill, in NJ, and of adoptees' rights everywhere. Today, it was learned that the bill she long supported will be signed into law by Governor Chris Christie, albeit with a compromise (http://tinyurl.com/jwxt783). Although the bill to be signed into law isn't all we would have liked, we know that in politics you often have to sacrifice the "perfect" in order to achieve the "possible."   Susan (my mom) fought hard to achieve a clean bill in NJ and she knew real change was coming in NJ and around the country, if not in her lifetime.   She would have  been ok with this compromise, recognizing how much it achieves for so many.

My mom, Susan Perry, on a trip to Disney with my family in 2010.

My family and I would like to extend our thanks to those who have worked so hard to bring this long overdue change to adoption law in NJ to fruition..... the NJCARE team, Senators Vitale and Allen, Speaker Prieto, those in the adoption triad around the country who have voiced their support, and those behind the scenes who came to recognize this as the basic civil rights issue it is.   Collectively this message got through to Governor Christie and helped allow him to make concessions that he previously wasn't willing to consider.   All in the adoption triad will benefit.   Hopefully those fighting for change in other states can use the NJ experience to assist their efforts to pass meaningful reform. 

 

Somehow, it seems fitting to post my dad's words about my mom at her service on April 11th along with this announcement. To me, they captured her perfectly.

My mom and dad in Spain this summer, before her diagnosis.

Good morning.

A few weeks ago when Kate and Jenn were talking with Susan about what they might say at her service, I piped in that I too planned to speak at the service.  Without hesitation Susan, knowing me so well,  responded,  “That’s not a good idea!”  So here I go, defying her for one of the very few times over the past nearly 45 years! 

And it was nearly 45 years ago, in the spring and early summer of 1971 that we would stand on her front steps and practice the lines from ee cummings’ poems that we planned to recite to each other on our wedding day along with the verses from 1st Corinthians 13 that so many millions have spoken over the years. Of course Susan had made the selections!  Most nights we couldn’t get through the lines without one of us cracking up in laughter! My lines were these:  

Here is the deepest secret that nobody knows

                                    

(here is the root of the root and the bud of the bud 

                                    

and the sky of the sky of a tree called life, which grows

                                    

higher than soul can hope or mind can hide)

                                    

and this is the wonder that’s keeping the stars apart

 

I carry your heart (i carry it in my heart)

Of course then I was confident about just about everything, and Susan would tell you unjustly so.  Now as I reflect on the lines from 1st Corinthians.... “for now we see in a mirror dimly,” I realize that perhaps Susan was right, and I didn’t quite have all the answers!  

Susan and the first family dog, Ranger

But I do now see some things “face to face”.... and find for the first time a wonderful connection between the words in Corinthians, "...so faith, hope, and love, these three abide, and the greatest of these is love,” and the lines in cummings' poem.   For faith, hope, and love are all emotions of the heart..... they are just there; you feel them or you don’t.    Susan and I worked hard to come to an understanding of our faith, as elusive as that often was for us, and over these past eight months we all were challenged by a hope that would keep sneaking into our hearts despite all evidence to the contrary.   And of course love, the emotion that welled up in our hearts all those many years ago, and has only deepened as we shared our life together.  

Together.... Susan and I did just about everything together.... and from the start, it was she who introduced me to just about everything we did:  

Water skiing, for it was watching her in the water trying to teach my brother Tom how to ski (one of the few things in her life she wasn’t successful achieving!) that the spark of love first was felt in my heart,

Tennis, and as best she could, teaching me how to hit a backhand. Did you know she had a great backhand?  One of my favorite things was to just be on the court working on our strokes together. And, of course, we could never leave until Susan felt she had hit the perfect stroke or left me sprawling at the net reaching for her passing shot, 

Snow skiing,  and the wonderful feeling of carving a turn in soft powder,  

Sailing, the joy of being up on a plane in our little sunfish flying across the bay, just the two of us;

After "Splash Mountain" in Disney together

Kayaking around the island at the end of our cove, stopping to swim in the same spot where we had both grown up swimming,

Biking to both ends of LBI and for many years our bike trip from Haddonfield to the shore, 

Gardening, a joy she found with the woodland garden at our new home, and at the beach house.   Already I am struggling to recall which pots go in which location.   

And just this past summer, the new adventure of stand up paddle boarding.  

And though it will be tough to see Susan’s skis in the closet, her bike, kayak, and sunfish in the garage, her tennis racket..... all of these things, because of her,  Kate and Jenn have taken up and now Grace, Emma, Genevieve, Eddie, Tyson, and Joseph also have come to learn from their Nana.   For it was Susan who taught Grace and Genevieve how to ski,  Susan who held their hands to build courage going in the surf,  Susan who cheered as they rode their first waves.  

Susan with the girls in LBI

Susan was a voracious reader, so it is no wonder that Emma is working her way through her 5th Harry Potter book.   And together Susan and Genevieve worked on drawing, an activity Susan turned to when she no longer could be physically active.   

When Susan took care of Grace, Genevieve, and most recently Joseph several days each week, they would exclaim in joy, “It’s a Nana Day!”   And, of course that meant going to Nana’s house..... a term that for a time made me feel somewhat slighted.   But of course  I understood well what they meant and why they said it that way.  And the same was true when all 6 of them would say, “We’re going to Nana’s beach house!”   Poppa Ty just happened to be another guest at Nana’s houses.

So, where do I turn knowing I have lost my best friend?

The answer is elusive, but I will start where Susan has lead me, saying : our grandchildren keep us looking forward and not backwards in time.  

This week I asked Grace and Emma, having known their Nana the longest of our grandchildren, to let me know what stuck out in their minds most vividly about her.  It only took a minute. Grace said, “ Nana always liked to boogie board.  She claimed she was the best even though secretly she knew she was not.  Even though sometimes she would mess up, she would always try again until she got it just right.  Nana especially loved it when her grandchildren did it with her.  She always claimed that she got the best rides even if it only lasted for 5 seconds.  Sometimes she would go deep in the water to get the best rides.  Nana always said that her back was sore after doing it, yet she kept doing it because she was determined and her love for the ocean was strong.”   

All six grandchildren in 2011. They loved their Nana fiercely, and she loved them.

And Emma added: “Nana had the best laugh.  She always giggled with us about her past, and when she was lying in her bed, she could not talk much but she laughed at our stories.  Nana had a great sense of humor.  Nana literally might have had the best and loudest laugh on the planet.   She had the habit of laughing at herself, even when no one else did.   We all loved Nana terribly and always will.”

We have a tradition in the summer of extending each day by gathering on the beach, getting in a twilight swim and having a glass of wine as the sun sets with those we love the most circled around us.  These were some of our favorite times together.

 

So, I will take to heart Susan’s words to me saying that she knew I will be OK without her.   She has been right about every important thing in our life together, so I will trust that with time I will see she is right about this too. 

 Susan, I say thank you,  for I will carry your heart, with faith, hope, and an unending love, I will carry it in my heart forever.

Love Will See You Through

                       Carol and her dear husband Jim, who passed away in 2012.  I

                       discovered Carol's identity through Jim's obituary, which I found

                       when I surveyed public records to see if my original mother had

                       passed away.  Life indeed works in mysterious ways.

My journey with my two sisters, discovered in September through a rather miraculous set of circumstances (you can read more about that story here), continues to amaze me.  Yesterday, my husband Ty and I visited my older sister Carol at her home in Pennsylvania.  My other sister Jo, and her husband Ray, drove two and a half hours from Red Bank, New Jersey to join us for lunch and an afternoon visit.

Carol prepared a lovely lunch -- split pea soup and homemade chicken salad, as well as an assortment of other salads and dessert.  I was so touched by all her efforts, and by the fact that Jo and her husband went so out of their way to spend time with us.  We spent the afternoon talking, sharing family stories, and playing a charade-like game called Catch a Phrase.  We have spent four whole days together now, with countless messages and e-mails flowing back and forth in between visits.  It seems that we have known each other so much longer.  Carol and Jo feel like such a part of our family now, to both me and Ty, and once again, I wonder why I am so blessed to have found these two dear souls.

As I continue to battle metastatic melanoma, I try to focus more on my blessings and my day-to-day life than my prognosis.  Meeting and getting to know Carol and Jo has certainly been a gift, one that has brought me so much love, peace and closure.  Carol unfortunately knows first hand the challenge of fighting a life-threatening disease, as she lost her dear husband Jim to brain cancer in 2012.  She has a knack for saying all the right things to me, and one comment in particular stays with me:  "Susan," she said, "Love will see you through."

She is so right!  We find out at times like this that love is all that matters, and I have been fortunate to find it in many places.  I had adoptive parents, and I have an adoptive brother, all who have loved me with all their hearts.  My husband is my best friend and the love of my life.  As soon as I became sick from my treatments, he arranged to work from home, and he is always here with and for me.

         Two of the loves of my life -- my youngest grandchild Joseph and my husband Ty

We are blessed with two daughters, their husbands who we love like sons, and six beautiful grandchildren ranging in age from three to nine.  One of my daughters is a doctor, so she is able to stay on top of my treatments and provide extra medical support.  My other daughter is a teacher at Masterman High School in Philadelphia.  One or the other always accompanies me and Ty to treatments.  Both live nearby and check in daily, with frequent visits from the grandkids, who thankfully force us to live in the moment, whether we want to or not!

                                 Joseph with his cousin Ty -- they are best buddies!

Grandchildren and cousins -- Genevieve and Eddie.  Can you tell how much they love each other?

 The older grandchildren, Emma and Grace.  How lucky are we, and how lucky are they?

I have one dear friend who gives me massages twice a week, another who comes to the house to cut my hair.  My daughter very ably administered my last hair color treatment!  Another long-time friend crafted me an exquisite quilt.  Other friends get me out to the movies, for short walks, and for discussions about books. (I love to read!)

I don't want to mislead you here.  I am not at all happy that I have stage 4 melanoma.  I would like very much to live for another 20 years, as I love my life and all the people in it.  But I also know that I have been blessed in many ways and that I am surrounded by a love that sustains me day by day.  And as Carol so wisely said, no matter what happens, that love will see me through.

"If the only prayer you ever say in your whole life is thank you, that would suffice." 

 Meister Eckhart